More than 1.5 million women in the UK are affected by the painful condition - but new study says NHS is failing them
Women with endometriosis who have endured years of excruciating pain are being “fobbed off” by doctors and told their symptoms are “all in their head”, leading them to give up seeking NHS treatment, new research has found.
A study carried out by academics at Manchester Metropolitan University found women with the disease felt “gaslit” by doctors due to their lack of understanding of the condition.
The paper, due to be published in the Journal of Health Communication later this month, also found that treatment was subject to a postcode lottery. Patients in rural areas reported travelling for hours to access a specialist with full training in the complex gynaecological condition.
Endometriosis is a painful condition in which tissue similar to the lining of the womb grows around other organs inside the abdomen. It affects 1.5 million women in the UK. The study looked at the experiences of treatment and diagnosis of 33 patients and revealed how doctors’ lack of understanding of the symptoms meant women often spent years in pain before their condition was diagnosed. During this period participants were told they were exaggerating their symptoms, or their pain was dismissed as psychological.
The is a very common problem. So common that many women seek out female doctors to get their endo properly diagnosed.
Has nothing to do with being “a casualty of war” for looking like they’re seeking pain meds. It has to do with a lack of education and understanding, particularly from older male doctors.
Interestingly, when I’ve happened upon threads (in r/twoX mostly) about this phenomenon, many women argued that female doctors were actually worse about this issue in particular — namely, gaslighting re: severity of pain. Their explanation was that female providers tended to relativize the pain described by a patient to their own experience of pain whereas male providers had no lived experience with comparable pain, and thus had less reason to downplay it.